Conference in Düsseldorf: health care for people with rare diseases

Rarely difficult? Do people with rare diseases need a special health care?

The LAG Selbsthilfe NRW together with ACHSE will arrange a conference to discuss this topic together with physicians and affected people.

Between 10 am and 4 pm lectures will be given about questions like:

• Rarely difficult? Needs of people with rare diseases by Mirjam Mann (ACHSE e.V.)
• A short way to right diagnosis and care - a big challenge for physicians and affected people by Dr. Christine Mundlos (ACHSE e.V.)
• Need-based health-care needs need-based conditions by N.N.
• Ho to reach a need-based and patients focussed care by Hermine Nock (chief executive of the association of cardiac children)
• Ambulatory tretment in hospital (after § 116 b SGB V)
• open forum