MEDIA - Special News on Rare Diseases
Fedra spokes in behalf of all the Portuguese patients in several journals, radios and TVs’.
Patients give their testimonies in all Portuguese media.
February the 6 th - EXPRESSO JOURNAL
"Government refuses to pay rare disease drug"
February the 8 th - LUSA NEWSAGENCY
"Patients will have a register data"
February the 9 th - TSF Radio "Fedra launches a register data for patients"
February the 9 th - Antena 1 Radio
Interview with António Vaz Carneiro, Rare Diseases Register coordinator
February - 10 - RCP Radio
Interview with António Vaz Carneiro, Rare Diseases Register coordinator
February - 10 - Correio da Manhã journal
"Patients will be registered in a database"
February - 10 - Sábado Newsmagazine
"Patients will be registered in a database"
February - 11 - TVI 24 television station
Interview with António Vaz Carneiro, Rare Diseases Register coordinator
February - 13 - TVI television station
Interview with Paula Brito e Costa, Fedra´s Presidente and a Wilson Patient
February - 22 - O´Porto Chanel television station
Media Doctor´s office with the presence of a geneticist who will answer questions from patients
February - 26 - RTP television station
Interview with António Vaz Carneiro, Rare Diseases Register coordinator
February - 26 - TVI24 television station
Media Doctor´s office with the presence of aspecialist on rare diseses who will answer questions from patients
February - 28 - SIC television station
Interview with Paula Brito e Costa, Fedra´s Presidente and several patients with diferent rare diseases and medical doctors
More information: www.fedra.pt