Rare Disease Day 2010

February 28

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Event - 1 Mar 2010 - CANADA

Extraordinary Measures – Movie Screening

Extraordinary Measures – Movie Screening Event

This movie is based on Pulitzer Prize winning author Geeta Annand's book "The Cure".  This is the true story of John Crowley who upon discovering his two very young children were diagnosed with Pompes disease (a very rare form of muscular dystrophy) set out to find a treatment for them.

 

CORD will be hosting a “private screening” in celebration of Rare Disease Day.  We hope to engage the federal Members of Parliament and their staff as they prepare to start the Legislative Session.

 

 

Date: March 1, 2010
Time: 4:00 p.m.
Location: Empire 7 Theaters World Exchange Plaza, 111 Albert St, Ottawa 

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To register for this event, send an email to: gparsvp@globalpublic.com


More information: www.raredisorders.ca

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