Opening of the campaign in Zalau
With a motto "healthy and sick - partners for life" campaign dedicated to the International Day of rare diseases began yesterday with a march Zalau of rare diseases, which was attended by dozens of people.
National Alliance for Rare Diseases and Prader Willi Association yesterday launched Romania, Zalau, campaign dedicated to the International Day of rare diseases, with a motto "healthy and sick - partners for life." And in this year's event theme is "Rare diseases: a public health priority." "The campaign is to raise awareness on rare diseases and their impact on the lives of patients and reinforcing their importance as a public health priority," said Dan Dorica, Prader Willi Association and president of the National Alliance for Rare Diseases. The campaign launch took place yesterday afternoon at the Culture House of Unions, and today, at 13.00 in room Avram Iancu Hall Zalau conference will be held for family physicians, following as at 15 30 to be released book "In the world of innocence", a book with 10 stories that could be true. "We hope the book will be read by people with disabilities to be more easily accepted by all of us," said Dorica Dan. At European level there are over 25,000,000 patients with rare diseases, of which over 1,000,000 are in Romania.
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