Taiwan Foundation for Rare Disorders
Taiwan Foundation for Rare Disorders' mission is to improve the life of rare disease patients. We carry out our mission by assisting rare disease patients to receive proper medical treatment and rehabilitation, securing orphan drugs and special nutrients and fulfilling the needs of rare diseases patients in terms of education, employment and long-term care. As a representative for rare disease patients in Taiwan, TFRD advocates the adoption of relevant legislation that ensures rare disease patients’ rights, encourages rare disease research, and raises public rare disease awareness.
View all events in TAIWAN
Feb
28
2010
Home Service Team & therapy DVD release press conference
May
20
2010
7th IPWSO World Conference, 20 to 23 May 2010
Rare Disease Day Partners: