There are more than 4500 different rare diseases in Europe. Most of these hereditary diseases have also patients in Slovenia. The funding for the diagnosis and treatment of these diseases are (often) not regulated. Therefore, patients and a profession are trying to establish a special fund for those patients who suffer from any of the rare diseases in Slovenia.

On 26th of February we organized a press conference to raise society’s awareness, to inform the general public on rare diseases and to improve cooperation between patients and medical profession for better quality of life of patients.

* Vizita.si:  http://vizita.si/clanek/novice/bolniki-in-stroka-za-ustanovitev-sklada-za-zdravljenje-redkih-bolezni.html

* Newspaper Dnevnik:  http://www.dnevnik.si/novice/zdravje/1042340536

To raise society’s awareness about the rare diseases in Slovenia we also wrote an article on Wikipedia:  http://sl.wikipedia.org/wiki/Redka_bolezen

Let´s work together to reach our goal!