Rare Disease Day 2010

February 28

MALAYSIA

Rare Disease Day 2010 in Malaysia

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In conjunction with the Rare Disease Day 2010, the Malaysian Rare Disorders Society (MRDS) held an exhibition at the University Malaya Medical Centre, Kuala Lumpur from 2 to 5 February 2010. The exhibition displayed basic information on what is rare diseases and on the activities of MRDS.

Malaysian Rare Disorders Society (MRDS)

Malaysian Rare Disorders Society (MRDS) was formed in 2004, with the help and guidance of the Genetic Unit, Department of Paediatrics, University Malaya Medical Centre.

MRDS is a voluntary organisation set-up to represent and look out for the welfare of individuals including their families that are affected by rare disorders.

We are about parent support. We hold events where parents share about their experiences in raising their children with rare disorders.

We are about raising community awareness. We join community events to raise awareness about rare disorders.

We are about involving our children in healthy activities. We look for opportunities for our children to participate in such outings and art activities.

We are about educating ourselves. We want to know what the latest medical research is done on specific rare disorders.

For more information on MRDS, visit us at www.mrds.org.my 

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