Rare Disease Day in Belgium
RaDiOrg.Be the Belgian national alliance of rare disease patient organisations is organising a day-long event at the Hotel Bloom (Rue Royale 250) in Brussels on February 27 from 10h30 - 16h00 at which speakers will talk about the state of advancement of the Belgian National Plan for Rare Diseases, Patient participation in clinical trials, Orphan Drug development and the role of patient advocates in shapeing rare disease public policy. Full programme available here
National Alliance
RaDiOrg.BEwww.radiorg.be
Radiorg.be coordinates the activities of some 80 Belgian rare disease patient associations who together represent 6.5% of the population.
Our main aims are:
Raise public awareness of the existence of these patient groups
Improve the quality ofcare
Ensure the supply of quality information to patients and their carers
Offer social assistance to these patients
Support research into the causes and t...
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