The 2009 Rare Disease Day Poster

EURORDIS advocates for the best interests of patients at all times, they are at the centre of all our activity. The patient's satisfaction is our goal. Patient centred care is the right care!

Through the publication of the EurordisCare book, “The Voice of 12,000 Patients”, the patient’s perspective can go beyond patients’ anecdotes and be additionally represented by the analysis of data collected through the EurordisCare2 and EurordisCare3 surveys.

These surveys directly investigated patients’ experiences and expectations regarding access to diagnosis and to health services, for a variety of significantly relevant rare diseases across Europe.

Read the Executive Summary of the EurordisCare3 survey