Friends of Rare Disease Day

    A way for you or your organisation to share what you will do this year

    Friends of Rare Disease Day

    Patient Organisations, health professionals, researchers, drug developers and public health authorities part of an organisation and having an interest in rare diseases are invited to join this year's campaign. Individual patients and families are encouraged to tell their story on our website by sharing pictures and videos.

    Joining hands

    Joining hands around the world for rare diseases!

    Joining hands

    Whether you are with your family at home, 10 people in an office, 100 people at a conference or 1000 people at a public gathering: RAISE AND JOIN YOUR HANDS to show your solidarity with rare disease patients around the world!

    Join the community

    Rare Disease Day On the YouTube Rare Disease Day On the Facebook Rare Disease Day On the Flickr Rare Disease Day On the Twitter

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    View photos

    RDD2013 at IBMC, Porto

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