Join us in making the voice of Rare diseases heard
29 february
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
2016 events
Tell your story!
My Child has just been
Beth Vanstone - Canada
My Child has been diagnosed with a fatal disease, Now What? Many of you will understand and remember well the moment you were told the news that “your child has…, this is a fatal disease.” Fortuntley
Kidney Disease
Arieal Bowers - United States
When I was a born I was diagnosed with the kidney disease it was sad i was in and out of hospitals my whole life. Then one again went to the hospital and they told my parents that it was cancer but turned
Jessi's Journey
Jessica Acton - United States
I have always heard your teenage years are the hardest. If I had only known how horrific they would soon become for me I would have enjoyed the little moments we all take for granted, just a little more.