Memorable Events
- Involvement from 63 countries
- Momentum for National Plans for Rare Diseases in several countries
- Official Video with over 100,000 views
- More than 3000 on-line press clippings
- European Symposium organised by EURORDIS
- All day event at NIH
Friends of Rare Disease Day
A way for you or your organisation to share what you will do this year

Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaign
Joining hands
Joining hands around the world for rare diseases!

Raise and hold hands at 12 noon GMT on February 29 and show your Solidarity with rare disease patients around the world.
Join the community
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@eurordis: Patients have say in the future of #raredisease research http://t.co/PRJvvb5r #rarediseases
May-03-2012 Read full tweet..
Official #RareDisease Day video eclipses 100k views in all languages. Watch the interview w/young stars on @TV3Ireland http://t.co/08grFyFU
Mar-06-2012 Read full tweet..
2012 was the largest International Rare Disease Day ever. See some of the highlights here: http://t.co/M3RABDdO
Mar-02-2012 Read full tweet..
@verbistheword: My finished @rarediseaseday poster is up! http://t.co/IHEVsXDG Please share! http://t.co/As4tstdu
Feb-29-2012 Read full tweet..
Andrew Jack of @FinancialTimes take home message at #Raredisease Day Symposium: consistency, greater coordination, accelerating research key
Feb-29-2012 Read full tweet..
@NIHClinicalCntr: Rare Disease Day happening at NIHClinicalCenter today. Follow us as we share the highlights throughout the day. #RD ...
Feb-29-2012 Read full tweet..
@MommyBeggiato: Rare Disease Day @ NIH! http://t.co/HSHxOPUo
Feb-29-2012 Read full tweet..
Afternoon session at #Raredisease Day Symposium focuses on added value of EU action in #raredisease LIVE at http://t.co/mvStS0GW
Feb-29-2012 Read full tweet..
@NeuroAlliance: @rarediseaseday pls our fair deal 4 neuro campaign,which will help improve services for ppl w/ rare neuro conditio ...
Feb-29-2012 Read full tweet..
Here at the #RareDisease Day symposium, Director of DG Research, read her special message here http://t.co/4sd1Ta9M
Feb-29-2012 Read full tweet..
To watch Commissioner for Health and Consumers John Dalli's #RareDisease video http://t.co/LiScgibW
Feb-29-2012 Read full tweet..
Irish MEP Nessa Childers calls on #EU countries to develop national plans for #raredisease by 2013 to improve lives of 30 million patients
Feb-29-2012 Read full tweet..
First up today @EURORDIS Pres. Terkel Andersen welcomes participants http://t.co/3GRGvmfY LIVE NOW #raredisease
Feb-29-2012 Read full tweet..
Setting up the Livestream for the #RareDisease Day 2012 Symposium in Brussels. Join us at 10 GMT http://t.co/3GRGvmfY .
Feb-29-2012 Read full tweet..
Today is the 5th International #RareDisease Day 2012. Over 60 countries participating. Show your friends the video http://t.co/daqsuJV4
Feb-29-2012 Read full tweet..
@scleroderma: Don't live in the US but still want to participate in @rarediseaseday? No problem! http://t.co/UCxZcA7s
Feb-29-2012 Read full tweet..
@GallusEffie Another inspiring person with @progeria http://t.co/hy3tSjZO #RareDisease Day 2012
Feb-28-2012 Read full tweet..
@BanceNolanLtd Thanks for . Others can upload their photos http://t.co/2zdzlUJK and @EURORDIS is showing pics at #RareDisease Day in BXL
Feb-28-2012 Read full tweet..
Favorite pic of todays uploads to the #RareDisease Day Flickr photostream http://t.co/OjJurHj7
Feb-28-2012 Read full tweet..
@HMSaware This is one of our favorite awareness videos on #EDS via IPPOSI http://t.co/dS13CUxI
Feb-28-2012 Read full tweet..
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