Key Rare Disease Day Events
Stay up to date with events around the world
- AT: 5. Informationstag zum Tag der Selt...
- HU: Collaboration with the University o...
- MX: Esculturas itinerantes de Gigi y Alda
- IT: Stand informativo durante il Carnev...
- IT: Stand informativo in farmacia
- IT: Stand informativo in piazza
- PH: Workshop for Parents of Rare Diseas...
Friends of Rare Disease Day
A way for you or your organisation to share what you will do this year

Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaign
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#RareDisease Day is making noise on social media, please share and some of the highlights http://t.co/xJ3jKVla
Feb-21-2012 Read full tweet..
Official #RareDisease Day Video now translated into 11 languages 8000+ views in 36 hours & growing. See for yourself http://t.co/MOO31Sc2
Feb-17-2012 Read full tweet..
#RareDisease Day at NIH raises awareness and highlights cutting-edge research http://t.co/HFB15VRF @NIHforHealth @ORDR @rarediseases
Feb-17-2012 Read full tweet..
#FF 29 Feb. World rare disease day. World rare what? http://t.co/MOO31Sc2 Watch the 1m22sec clip & pass it on! Thanks
Feb-17-2012 Read full tweet..
@SerranoGimare: 23-24 febbraio 2012 - Workshop "Clinical practice guidelines on rare diseases" http://t.co/DuCmzHWy #raredisease
Feb-17-2012 Read full tweet..
Read about the ★★STARS★★ of the Official #RareDisease Day Video http://t.co/MOO31Sc2 #friedrich's-ataxia #EB #RP #Ehlers-Danlos #Alpha-1
Feb-17-2012 Read full tweet..
I uploaded a @YouTube video http://t.co/qCclpT2b Ritka Betegségek Világnapja 2012 -- Szolidaritás
Feb-17-2012 Read full tweet..
Der Neue Videoclip http://t.co/9TNj86ys zum Tag der Seltenen Krankheiten: Jetzt Link verbreiten! #krankheiten
Feb-16-2012 Read full tweet..
@Kokcinelo @Gregoireoff Impressionant! la lecture des 7000 maladies rares en marathon le 3 mars à Montpellier http://t.co/dHQ2XInY
Feb-16-2012 Read full tweet..
@GasteinForum Thank you for sharing the #RareDisease Day Video http://t.co/Fgb3RPMj
Feb-16-2012 Read full tweet..
Dia das Doenças Raras o novo vídeo http://t.co/IdmhN4Ko compartilhá-lo #rarediseases#rarediseases
Feb-15-2012 Read full tweet..
The official #RareDisease Day 2012 video is now live! - Show Solidarity: Share it, tweet it, Embed it.. http://t.co/8bwv272U
Feb-15-2012 Read full tweet..
@CanadianMarfan @gaobar @africanserena @SerranoGimare @alanROYGBIV Thanks 4 the More #RareDisease Day Updates coming http://t.co/jjHKdsBR
Feb-14-2012 Read full tweet..
Read my story @Storify: "Feb 29 2012: A rare day! Solidarity with people living with rare diseases" http://t.co/PIjPGFHd #raredisease
Feb-14-2012 Read full tweet..
Just over 14 days to #RareDisease Day 2012 on Feb 29, this year looks to be bigger than ever and still a couple of surprises to come
Feb-14-2012 Read full tweet..
@Kokcinelo: @eurordis http://t.co/dHQ2XInY RDD à Montpellier #raredisease#rarediseases
Feb-13-2012 Read full tweet..
#RareDiseaseDay '12 Get involved! http://t.co/9w89FwCc & let us know! #rarediseases
Feb-08-2012 Read full tweet..
1-3 Jun '12 5th Int'l Conference “Ectodermal Dysplasia” http://t.co/41jw9yYM (ED2012) Erlangen,DE #rarediseases#raredisease
Feb-03-2012 Read full tweet..
@GenzymeCorp @Geneticsupdate @bloodgoal @BrokenHearteded Thanks for the follow, want to be friends of #Raredisease Day? http://t.co/3E3roAje
Jan-27-2012 Read full tweet..
@timeswellness Nice article on #Raredisease Day in India. Hope you will be there to cover the events at the end of Feb. http://t.co/zruuwdy8
Jan-27-2012 Read full tweet..
Rare Disease Day in the News
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