Join us in making the voice of Rare diseases heard
28 february
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
2017 events
Tell your story!
CHAMP1 Gene
Stacey - United Kingdom
Calum McPherson's condition has left him with severe speech difficulties. There are a few important things to know when you first meet young Calum McPherson. The first is that he has one of the most
Australia
Kathleen - Australia
4 years ago I was diagnosed with autoimmune hepatitis, I have been in remission for 1 year but still have other health issues, I would love to go to rare disease day in Adelaide but can't find one? Keep
Endless love
Mariani - Brazil
Augusto Mezadri was born on April 24, 2014. He is Daniela and Lucas Mezadri's son. He was diagnosed with Mucolipidosis II when he was 14 months old. His mom's pregnancy was OK till some exams showed the