Join us in making the voice of Rare diseases heard
29 february
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
2016 events
Tell your story !
I battle CRPS every moment
Roxanne Dawn - United States
I battle CRPS every moment of every day. Living w/ CRPS has changed every aspect of my life. Even on the worst days when it's flaring out of control, I won't allow it to take away my smile or hope for
Liliana's Legacy
Ivy A. - United States
~ I had hoped Liliana’s birth would be the end of the pregnancy chaos, but I had no idea it was only the beginning. During my pregnancy I had; pneumonia, food poisoning, toxemia and was diagnosed with
Emily's journey
Angela Mitchell - United States
I want to introduce you to my daughter Emily. Emily is know 17 and battling an incurable disease. My daughter has hypermobility syndrome. She was dignosed when she was 14 but was having signs around 8.