Rare Disease Day 2009

2009 Highlights

See some of the key clips from this year's events

FERNANDO TORRES, well-known Spanish football player speaks out for Rare Diseases
German television report about the rare disease, Williams Syndrome
Rare Disease Day 2009 video address from Her Royal Highness, Crown Princess Mary of Denmark.

The Voice of 12,000 Patients

Publications of EurordisCare3 Survey

Rare diseases are often chronic, progressive, degenerative, life-threatening and disabling diseases. Many rare disease patients are denied their right to the highest attainable standard of health and continue to advocate their need to overcome common obstacles.