Key Rare Disease Day Events
Stay up to date with events around the world
- IT: Stand Informativo in Farmacia
- CA: Celebrate Rare Disease Day with the...
- IT: Stand Informativo in Farmacia
- IT: Partita di Pallanuoto
- IT: Stand Informativo in Farmacia
- IT: Mostra con momenti di incontro e pr...
- RO: Launch campaign with the theme: Int...
Friends of Rare Disease Day
A way for you or your organisation to share what you will do this year

Patient Organisations, health professionals, researchers, drug developers and public health authorities part of an organisation and having an interest in rare diseases are invited to join this year's campaign. Individual patients and families are encouraged to tell their story on our website by sharing pictures and videos.
Joining hands
Joining hands around the world for rare diseases!

Whether you are with your family at home, 10 people in an office, 100 people at a conference or 1000 people at a public gathering: RAISE AND JOIN YOUR HANDS to show your solidarity with rare disease patients around the world!
Join the community
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Learn about the 'Chain of Trust' EU project assessing the public's perspective on telehealth http://t.co/MLzuG7KPiG @eupatientsforum
May-07-2013 Read full tweet..
Amazing story of family who discover diagnosis of Anti-NMDAR Encephalitis at just the right time http://t.co/AqyZSqpYwQ #raredisease
May-06-2013 Read full tweet..
@eurordistv: One network of patient groups and a Crowdfunding project for research for Lowe Syndrome @I_lowe_you http://t.co/XwHOnZuqom
May-02-2013 Read full tweet..
@eurordis: "Gleevec has received billions in profits as a “blockbuster” drug. Its time Gleevec gives way to generics" OrphaNews http://t…
Apr-23-2013 Read full tweet..
@valeeurordis: #IRDiRC Day 2 Maria Mavris @eurordis speaks about patient involvement at all stage of research and therapy development
Apr-17-2013 Read full tweet..
@RareConnect: 28 February 2013 marked the sixth #RareDisease Day. And what a day it was! http://t.co/mQGBapVoQa via @eurordis
Mar-22-2013 Read full tweet..
@paugasol Moltes gràcies Pau per compartir el #RareDisease Day! És 1 dia important per nosaltres i cada any aconseguim una mica + de difusió
Mar-07-2013 Read full tweet..
Joining hands for #RareDisease in Philippines in our ever growing photostream http://t.co/BAtErZhTMT
Mar-04-2013 Read full tweet..
#RareDisease Day developments in Dubai, United Arab Emirates via news video in English http://t.co/rATpGdHMiN
Mar-04-2013 Read full tweet..
@chkeblessingway we're contacting our colleagues at @rarediseases to see where the message is now posted. We'll let you know shortly
Mar-04-2013 Read full tweet..
@FEDER_ONG Ministerio de Sanidad:Protección d los derechos sanitarios de las personas con #enfermedadesraras http://t.co/LEAsvfCiEv
Mar-01-2013 Read full tweet..
Highlights from some of the 71 countries that participated in #RareDisease Day 2013 Thanks so much for being involved http://t.co/fSnyqsvLsN
Mar-01-2013 Read full tweet..
We've done the math and are proud to announce that at least 71 countries are participating in the 6th #RareDisease Day. Largest ever!
Feb-28-2013 Read full tweet..
#London @independant today: A #RareDisease supplement by @MediaplanetUK with help of @rarediseaseuk & patient groups http://t.co/8x6HHarIkQ
Feb-28-2013 Read full tweet..
@AllianceMR organized a show of solidarity with #RareDisease patients globally from Paris today. Great looking bunch http://t.co/GhIs43tJCv
Feb-28-2013 Read full tweet..
Events from around the world highlight #RareDisease Day 2013. Rare Disorders without Borders http://t.co/oBMKwyCPXn
Feb-28-2013 Read full tweet..
Catalan #RareDisease Day video via Plataforma de Malalties Minoritàries http://t.co/gF6MH90Ci5 Tots junts fem pinya! Together we're stronger
Feb-28-2013 Read full tweet..
@plos: #RareDisease Day: What 5 Kids with Low Vision CAN Do @rickilewis http://t.co/jJuMSCqt5l
Feb-28-2013 Read full tweet..
.@nhsportssehants @BillyAnton90 Thanks for the mention. How are you celebrating people with #RareDiseases today?
Feb-28-2013 Read full tweet..
EU announces €144 million for 26 #RareDisease projects http://t.co/hmTPGXJQOL Huge need for European cooperation in #RareDisease research
Feb-28-2013 Read full tweet..
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