Research brings hope to people living with a rare disease
28 february
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
2017 events
Tell your story!
Ledderhose disease
Claudia - United Kingdom
Hello, I'm 18 years old and I've been dealing with this disease for 10 years. Ledderhose disease (or plantar fibtomatosis) causes the thickening in the plantar fascia, causing lumps to grow on the foot/feet.
Rare since 12
Lauren - United States
I am currently 15 years old and am living a fairly normal life. I hang out with my friends, spend time with family, and go to school, but life wasn't always this way. At 12 years old, I was diagnosed with
Ellie Rose, syndrome de
Emilie - France
Ellie Rose est née le 28 mars 2012. Elle est née après terme,. Elle était toute molle, dormait tout le temps et mangeait peu. Elle a été nourrie pendant 6 semaines par sonde nano-gastrique et des examens