Rare Disease Day 2009

February 28

The theme of Rare Disease Day 2009: Patient Care: A Public Affair! Why Rare Disease Day? What is a Rare Disease? Tell your Rare Disease Story

2009 Highlights

See some of the key clips from this year's events

More Video Highlights >

Rare Disease Day 2009: Facts & Figures > >

The Voice of 12,000 Patients

Publications of EurordisCare3 Survey

EurordisCare3

Rare diseases are often chronic, progressive, degenerative, life-threatening and disabling diseases. Many rare disease patients are denied their right to the highest attainable standard of health and continue to advocate their need to overcome common obstacles.

Read more >

Rare Disease on the Web

Follow Rare Disease Day 2009

Rare Disease Day in the News

Video Contest Winner

  View more videos
You need Flash player 8+ and JavaScript enabled to view this video.

Photo Stories: Patient Testimonies on Flickr

Add your photo to the photowall!


Tell your story with a photo
Rare Disease Day Partners: